We foster and fund more biomedical ME/CFS research - with your help
The ME/CFS Research Foundation has been campaigning for research into ME/CFS and Long COVID since 2022. Please support our work in this important area with your donation!
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe multisystem disease that usually occurs after an infection but can also be triggered by other factors. Some patients with Post-COVID-Syndrome suffer from ME/CFS. It is the last major disease that has unfortunately been little researched to date. In Germany, there are over 650,000 ME/CFS patients (over 40 million worldwide), approx. 40% of whom have ME/CFS after Long COVID. The patients also include approx. 80,000 children and adolescents in Germany.
Patients have a very low quality of life and often a high degree of disability (two thirds are unable to work). To date, there is no causal treatment. So far, there has been too little public funding for research and, accordingly, little research into this disease, which has been known for over 60 years.
Our goals and initiatives
We demand and support more effective research into ME/CFS. Patients are often medically and socially neglected – also in Germany. Yet ME/CFS is a common, complex medical problem whose relevance continues to grow strongly as a result of the pandemic ("Long-COVID").
Biomedical research into ME/CFS creates the basis for better knowledge and teaching and thus recognition, diagnosis, treatment and hopefully one day causal therapies for this terrible disease. So that patients will again be able to engage in their jobs, schools and families.
Better diagnostics
Currently, there is no specific biomarker. Therefore, ME/CFS is often misdiagnosed, diagnosed too late, or not diagnosed at all.
Recognition
Patients are often psychosomatised as MDs cannot yet properly diagnose ME/CFS. Although medically disproved long ago, this realisation has not yet reached all medical practitioners.
More research
ME/CFS is still far too little researched, even compared to other common diseases. But research is the first step towards better diagnosis and therapy ...
Support!
Currently there is a lack of funding for ME/CFS research. You can change that together with us! In many ways ...
Support our work!
Your donation helps
Your donation directly and 100% supports our commitment to generate more biomedical research into ME/CFS. We invest in biomedical research for better diagnostics and therapies, in line with our research funding strategyand in consultation with an international Scientific Advisory Board.
About us
Who we are
Due to insufficient research to date, there is a lack of medical knowledge, recognition, education/training, diagnosis, therapy and, ultimately, care for ME/CFS patients. We are addressing this problem by investing in the expansion of research.
We are a team of patients, relatives and committed supporters. To expand our work, we welcome financial support as well as active support of any kind!
Supporters
Are you a patient, family member or other supporter and would like to support us? Then please donate and inform your network about our work!
How can you contribute?
Building and funding biomedical research requires a lot of support. For example, we are working on establishing a network of researchers, building up fundraising, working with the major patient organisations and constantly looking for new ideas and, above all, people who can implement them responsibly and effectively.
If you want to and can support us - we'd love to hear from you! ... and please feel free to pass the word on!
