We want to establish effective ME/CFS research - with your help
ME/CFS Research Foundation will foster and finance biomedical research into the diseases ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) and Long COVID. Please support our work in this important area with your donation!
ME/CFS occurs after infections, including COVID-19 ("Long COVID"). It is the last, major disease that has unfortunately hardly been researched so far. Even before the pandemic, there were over 300,000 people affected, including 40,000 children and adolescents in Germany (over 17 million affected worldwide). In addition, there is a rapidly growing number of Long COVID patients. Due to the pandemic, the number of ME/CFS cases is expected to double.
ME/CFS patients suffer from this severe, physical disease, 60% are unable to work. Until now, there has been hardly any public research funding in Germany and also Europe for this disease. Hence so far only few researchers have been working on this disease, which has been known for more than 50 years...
We demand and promote effective research into ME/CFS - with your support?! The problem: ME/CFS patients have so far been medically and socially neglected to a very large extent. Yet ME/CFS is a common, complex medical problem whose relevance is currently increasing strongly due to "Long COVID".
Biomedical research will create the basis for more medical knowledge and teaching on this subject. Hence recognition, diagnosis, treatment and hopefully one day a causal therapy for this terrible disease may follow. This may enable ME/CFS patients that are missing out on their lives today to become active again – in their jobs, schools and families.
Currently, there are no specific biomarkers, so ME/CFS is often diagnosed by medical doctors too late, incorrectly or not at all. Many patients suffer badly from these diagnostic mistakes.
Patients are often psychosomatised for "lack of a better diagnosis". Although the "psychosomatic thesis" has been scientifically disproved long ago, this realisation has not yet sufficiently reached the practices.
ME/CFS has not been researched sufficiently to-date, particularly if compared to other common diseases. But research needs to happen in order to improve understanding of this terrible disease.
Currently there is a lack of money for biomedical research. We want to change that with your help! With these funds, we will initiate important research projects that may later be leveraged even further with public funding.
Your donation helps
Your donation will directly and 100% support the biomedical research of ME/CFS. An international scientific/medical advisory board (currently being established) will ensure the effective use of our funds.
Who we are
For lack of ME/CFS research so far, there is a lack of medical knowledge, recognition of the disease, education/training, diagnosis, therapy, and finally care for ME/CFS patients. We want to address this problem and invest in the expansion of ME/CFS research. That is why we established the ME/CFS Research Foundation in 2022.
We are (still) a small team of patients, relatives, friends, and committed supporters. We are looking forward to financial and active support of any kind to expand our work!
Are you a doctor, biologist or other scientist who would like to actively support us? Get in touch now!
Media & politics
Are you a journalist, politician or would you like to support us in communications? Get in touch now!
Are you a patient, family member or other supporter and would like to support us? Then please donate and inform your network!
How can you contribute?
Building and funding biomedical research requires a lot of support. For example, we are working on establishing a network of researchers, building up fundraising, working with the major patient organisations and constantly looking for new ideas and, above all, people who can implement them responsibly and effectively.
If you want to and can support us - we'd love to hear from you! ... and please feel free to pass the word on!