ME/CFS Symposium 2023
ME/CFS Symposium on Research and Care at the Charité Fatigue Center
On 12 May 2023, under the patronage of Federal Minister Karl Lauterbach (BMG), a compact overview of the state of research and care in Germany was presented - for ME/CFS patients, relatives, medical professionals and the public. We are publishing all presentations here. Please support our work!
supported by:
Care and Research in Germany I
14:30 h
Welcome ME/CFS Symposium 2023 and greetings
Carmen Scheibenbogen, Charité Fatigue Center,
Karl Lauterbach, Federal Minister of Health, patron of the ME/CFS Symposium,
Erich Irlstorfer, Member of the Bundestag, Member of the Health Committee,
Veronika von Messling, Federal Ministry of Education and Research
14:50
ME/CFS care and research in Germany - Where do we stand today?
15:05 h
CFS_CARE - Care model for patients with ME/CFS
Bianca Erdmann-Reusch, Bavaria Clinic, Kreischa
15:20 h
MECFS Registry and Biobank
Daniela Schindler (standing in for Matthias Hägele), Chronische Fatigue Centrum für junge Menschen, Klinikum MRI / Technische Universität München
15:35 h
BAYNET FOR MECFS - Bavarian Network for ME/CFS Research
Care and Research in Germany II
17:05 h
ME/CFS Research Funding - The Role of Foundations
Joerg Heydecke, ME/CFS Research Foundation
17:15 h
Shaping ME/CFS research together - The role of patient organisations
Sebastian Musch, German Association for ME/CFS (Deutsche Gesellschaft für ME/CFS)
17:25 h
Health services research and its importance for ME/CFS patients
Lieseltraud Lange-Riechmann, Fatigatio e.V. - Federal Association ME/CFS
17:35 h
Closing & Farewell
Carmen Scheibenbogen, Charité Fatigue Center
Uta Behrends, Chronische Fatigue Centrum für junge Menschen, Klinikum MRI / Technische Universität München