{"id":8810,"date":"2024-07-31T12:53:30","date_gmt":"2024-07-31T12:53:30","guid":{"rendered":"https:\/\/mecfs-research.org\/?p=8810"},"modified":"2025-09-13T13:38:12","modified_gmt":"2025-09-13T13:38:12","slug":"2024summer-review","status":"publish","type":"post","link":"https:\/\/mecfs-research.org\/en\/2024summer-review\/","title":{"rendered":"Our commitment to more biomedical ME\/CFS research - what have we achieved so far?"},"content":{"rendered":"

When we started our work at the end of 2021, there were already around 500,000 people with ME\/CFS in Germany but (still) hardly any public funding for research into the disease. Since the establishment of the non-profit ME\/CFS Research Foundation at the beginning of 2022, we have been working for more biomedical ME\/CFS research, financed by private donations. <\/strong><\/p>\n\n\n\n

Meanwhile public funding programmes have been launched. ME\/CFS research in Germany is slowly gaining momentum, as shown by the increasing number of ongoing research projects (for details see our ME\/CFS Research Update<\/span><\/a>).<\/p>\n\n\n\n

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Our last our review from December 2023<\/span><\/a> looked at the activities since the launch of the ME\/CFS Research Foundation up to the end of 2023. Since then, we have been able to realise further milestones - in line with the objectives of our ME\/CFS research funding strategy<\/span><\/a>:<\/p>\n\n\n\n

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  1. fundraising \/ donations (and use \/ funding)<\/li>\n\n\n\n
  2. funding of ME\/CFS research projects<\/li>\n\n\n\n
  3. networking of researchers (international)<\/li>\n\n\n\n
  4. public relations \/ making research transparent<\/li>\n<\/ol>\n\n\n\n
    \n\n\n\n

    1. Fundraising \/ donations (and use \/ funding)<\/h4>\n\n\n\n

    Since our founding we have raised over EUR 0.82 million in private donations and funding until the end of December 2023. In the period from January to mid-July 2024, we received a further EUR 0.55 million in donations, giving us a total of EUR 1.37 million to date. With these funds, we were able to provide important stimuli for research and have thus created a sound basis for our future work. A big thank you for this support goes to all our sponsors! Their large and small commitments show that together we can make great strides.<\/p>\n\n\n\n

    There are currently more and more fundraising campaigns in which those affected, relatives, but also friends, associations, initiatives, choirs, etc. collect donations for research. They collect donations for research on very different occasions (e.g. birthdays, ME\/CFS Day on 12 May, concerts, sporting events, charity events). We have expanded our donation page<\/span><\/a> with suggestions and published examples and further tips in our news section.<\/span><\/a> We are currently seeing new fundraising campaigns every week and look forward to many more creative initiatives and support for our work!<\/p>\n\n\n\n

    The funding of the ME\/CFS Research Foundation is made up of:<\/p>\n\n\n\n