{"id":5189,"date":"2024-03-16T10:40:00","date_gmt":"2024-03-16T10:40:00","guid":{"rendered":"https:\/\/mecfs-research.org\/?p=5189"},"modified":"2025-11-06T20:48:49","modified_gmt":"2025-11-06T20:48:49","slug":"fundraiser","status":"publish","type":"post","link":"https:\/\/mecfs-research.org\/en\/fundraiser\/","title":{"rendered":"Starting your own fundraising campaigns for more ME\/CFS research - how does that work?"},"content":{"rendered":"

Fundraising campaigns for more ME\/CFS research make an important contribution to improving the medium-term prospects of the many patients affected. We appreciate every single one of these initiatives - big and small. In this article, we would like to show you how anyone can start a fundraising campaign for the ME\/CFS Research Foundation in just a few simple steps.<\/strong><\/p>\n\n\n\n

When over 500,000 ME\/CFS patients (Germany) get involved in fundraising together with those around them, a lot of research becomes possible. This is exactly what we are committed to. Because only biomedical research leads to better diagnostics and ultimately to effective therapies, which are still lacking.<\/p>\n\n\n\n

It is often said that research funding is primarily the responsibility of the state; it is unfair for patients to have to contribute themselves; many patients live under-supplied, sometimes in precarious situations; ME\/CFS is a major medical and social disaster. We at the ME\/CFS Research Foundation agree with all of these points. ME\/CFS research has been neglected for decades. And there is a significant research backlog<\/a><\/span> compared to other diseases. We are committed to improving this situation. Together with other organisations, we are calling for more and sustainable public ME\/CFS research funding!<\/p>\n\n\n\n

We also know that private donations play a key role in ME\/CFS research. With their help, previously neglected topics and issues can be quickly and unbureaucratically transferred into research projects. With this basic work, researchers create new approaches that can later be continued in larger structures with public funding. There are many examples of this (e.g. in our activity report, Dec.23<\/a><\/span>). And mathematically, patients and their families would be able to solve a large part of the funding problem themselves. 500,000 donations\/actions quickly add up to millions (for comparison: just under EUR 7 million per year is currently publicly funded). This is another reason why we want to significantly increase private involvement. Because getting involved and<\/em> actively demanding more public funding are not mutually exclusive. We need all the support we can get. #strongtogether!<\/p>\n\n\n\n

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For example: Lisa's initiative: a birthday gift of hope for ME\/CFS research \ud83d\ude4f\ud83c\udffd<\/h4>\n\n\n\n

Lisa (21), a young woman from Baden-W\u00fcrttemberg who is herself seriously ill with ME\/CFS, is launching a fundraising campaign for the ME\/CFS Research Foundation in March 2024 to mark her 22nd birthday. Lisa has chosen a path that is not only personally meaningful to her, but also has the potential to help many ME\/CFS patients in the medium term. Within a few weeks, she was able to collect EUR 12,500 in donations. Lisa's initiative shows the powerful impact that a personal initiative can have, even with a simple online fundraising campaign.<\/p>\n\n\n\n

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This story is a powerful example of how each and every one of us can make a difference by championing a cause that is close to all our hearts.<\/p>\n\n\n\n

Like Lisa's birthday, there are many other occasions when ME\/CFS patients and those around them can make their own contributions to ME\/CFS research. Whether it's a birthday, anniversary, club or school event - every action counts!<\/p>\n\n\n\n

What opportunities are there to start your own fundraising campaigns?<\/p>\n<\/div>\n<\/div>\n\n\n\n

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Suggestion 1: Start a fundraising campaign on GoFundMe:<\/h4>\n\n\n\n

On gofundme<\/a><\/span> (external link) you can simply register and start your own fundraising campaign in just a few minutes. All you need is<\/p>\n<\/div>\n\n\n\n

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